Friday, June 03, 2005

More on AIDS Trials for Foster Children

I'm still trying very hard not to be cynical about Wally's stance on this. myDNA has a new more details on the situation.

The research was federally funded by the National Institute of Health and offered a means for foster children from Texas, Illinois, North Carolina, Colorado, Louisiana, Maryland, and New York to seek a possible cure or treatment for their disease.

It is alleged that the researchers did not adhere to the guidelines of the "Protection of Human Subjects," which states that any investigator using human test subjects must aquire legally effective informed consent from the subject, the parents, or a legal guardian. Since these foster children were not of legal age to consent and lacked a parent or legal guardian to offer such consent, researchers promised the NIH to involve medical advocates in their clinical trials, but failed to hold true to their word.

Initially I was worried that this was about restricting HIV tests, but that is clearly not the case.

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